Japanese
あやめちゃんのしゃしん、あやめちゃんにしんぞういしょくを!

Total donation amount

(On December 8, 2017)

309,102,479 yen / 310,000,000 yen  

※ 1 USD = 109.323 JPY
※ 1 EUR = 128.664 JPY

Cost Breakdown

Cost
Surgery fee 251.563 million yen
Reserve cost ahead of surgery 25.87 million yen
Travel fee 60 million yen
Local lodging cost 6.5 million yen
Secretariat expenses 2 million yen
※If we end up with a surplus of funds beyond what we need for Ayame, the additional funds will be passed on to other children in similar situations to Ayame.

Goal

Ayame is currently waiting for a heart transplant.

Unfortunately it is unlikely she will find a donor in her native Japan, so her parents have decided to travel to the United States in search of a donor. In order to cover the high costs of travel and various medical experiences, her family has formed the *Let's save Ayame-chan team* to begin fundraising. Estimated costs total 310 million yen.
Even a small donation could mean the difference between Ayame being able to receive life saving treatment or not. We appreciate any help you can provide!

About Ayame

あやめちゃんじこしょうかい

Ayames family name is Sasaki, she was born on May 16, 2015.

Ayames likes: dancing, sticking stickers on EVERYTHING, drawing

Dislikes: diaper changing time

※ Forbidden to use for purposes other than PR publicity activities for saving Ayame.


Transplant details

Ayame was born in Kawasaki City in Kanagawa Japan on May 16, 2015. She was first hospitalized May 17 - 30, 2015 with an enlarged heart due to heart murmurs. She was later readmitted to the NICU August 6, 2015 due to an infection with RS virus. She was again admitted May 11 - 17, 2016 due to infection with human metapneumovirus.


Ayame was later admitted on: May 31 - June 11, 2016, pneumonia June 16 - 23, 2016, bronchitis July 27 - 6, 2016, deteriorating heart failure September 21 - 30, 2016, due to loss of appetideteriorating heart failure October 1 - 22, 2016, deteriorating heart failure October 24 - November 17, 2016, deteriorating heart failure. It was at this time that doctors decided that the only way for Ayame to survive with her worsening condition is to receive a heart transplant.


On November 17, 2016 Ayame was transferred to Saitama Medical University International Medical Center. 12 days later she had surgery to receive an assistant artificial heart.


Some words from Ayames parents

We want to thank everyone who has taken time to volunteer and all those who have donated to save our daughter.
When Ayame was born she was 2850g just over 6lbs on May 16, 2015.

うまれたてのあやめのしゃしん

After her first hospital admission her doctors discovered she had ventricular myocardial densification disorder.

Initially, she grew steadily.

ほほえむあやめのしゃしん

A few months later,her condition got worse and worse.

The Third hospital her doctors said "Her only chance to recover would be to receive a heart transplant."

あせをたくさんかいているしゃしん

Although Ayame is currently hooked up to an artificial heart, it is unlikely she will survive long enough to find a suitable donor in Japan.

Our only hope to be able to bring our daughter home and see her grow is to find a donor outside the country.

This was not an easy decision to make and will no doubt be a long hard road, but we believe it is the only way we can save our daughter.

VADをつけたあやめのしゃしん

We appreciate your warm support and cooperation.

Kosuke and Saori Sasaki

For donations:

Our hope is to reach our goal within 1 months.
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