327,724,097 yen ／ 310,000,000 yen
|Surgery fee||251.563 million yen|
|Reserve cost ahead of surgery||25.87 million yen|
|Travel fee||60 million yen|
|Local lodging cost||6.5 million yen|
|Secretariat expenses||2 million yen|
Thank you so much everyone for the warm support and cooperation during our fund raising for Ayame. Thanks to everyone’s help we were able to achieve our goal of 310 million yen. We concluded our fund-raising activities on Friday, December 8th.
When we started out, we didn’t know if such a tremendous amount of money was possible to raise and what we could do to make it happen, all we felt was anxiety, however thanks to everyone who supported us we managed to start to work towards our goal. We started activities on the 26th of April and continued for almost 8 months. We were able to continue these activities because of everyone who supported us no matter how long, how hot, or how cold it was. Even those who had never met Ayame, encouraged us with many warm words and assistance, and that is something we cannot thank you for enough.
We are now preparing for the Ayame-chan family to travel in early January. We will report on the progress of Ayame-chan in the future, so everyone can follow along on the next step to save Ayame.
We are so thankful to everyone that helped us reach our goal, to all the kind and loving support, and for all the continued care everyone has shown us throughout this entire process.
December 25, 2017
Let's save Ayame-chan team
Unfortunately it is unlikely she will find a donor in her native Japan, so her parents have decided to travel to the United States in search of a donor. In order to cover the high costs of travel and various medical experiences, her family has formed the *Let's save Ayame-chan team* to begin fundraising. Estimated costs total 310 million yen.
Even a small donation could mean the difference between Ayame being able to receive life saving treatment or not. We appreciate any help you can provide!
Ayames family name is Sasaki, she was born on May 16, 2015.
Ayames likes: dancing, sticking stickers on EVERYTHING, drawing
Dislikes: diaper changing time
※ Forbidden to use for purposes other than PR publicity activities for saving Ayame.
Ayame was born in Kawasaki City in Kanagawa Japan on May 16, 2015. She was first hospitalized May 17 - 30, 2015 with an enlarged heart due to heart murmurs. She was later readmitted to the NICU August 6, 2015 due to an infection with RS virus. She was again admitted May 11 - 17, 2016 due to infection with human metapneumovirus.
Ayame was later admitted on: May 31 - June 11, 2016, pneumonia June 16 - 23, 2016, bronchitis July 27 - 6, 2016, deteriorating heart failure September 21 - 30, 2016, due to loss of appetideteriorating heart failure October 1 - 22, 2016, deteriorating heart failure October 24 - November 17, 2016, deteriorating heart failure. It was at this time that doctors decided that the only way for Ayame to survive with her worsening condition is to receive a heart transplant.
On November 17, 2016 Ayame was transferred to Saitama Medical University International Medical Center. 12 days later she had surgery to receive an assistant artificial heart.
We want to thank everyone who has taken time to volunteer and all those who have donated to save our daughter.
When Ayame was born she was 2850g just over 6lbs on May 16, 2015.
After her first hospital admission her doctors discovered she had ventricular myocardial densification disorder.
Initially, she grew steadily.
A few months later,her condition got worse and worse.
The Third hospital her doctors said "Her only chance to recover would be to receive a heart transplant."
Although Ayame is currently hooked up to an artificial heart, it is unlikely she will survive long enough to find a suitable donor in Japan.
Our only hope to be able to bring our daughter home and see her grow is to find a donor outside the country.
This was not an easy decision to make and will no doubt be a long hard road, but we believe it is the only way we can save our daughter.
We appreciate your warm support and cooperation.
Kosuke and Saori Sasaki